Privacy Policy

1. Introduction
TEMPO (“we,” “us,” or “our”) is committed to protecting the privacy and confidentiality of its users. This Privacy Policy explains how we collect, use, store, and protect your personal and health-related data in compliance with:

• Quebec and Canada (PIPEDA) Laws
• Guidelines from the Research Ethics Board (REB) of the Centre Intégré universitaire de santé et des services sociaux (CIUSSS) de l’Ouest de l’Île-de-Montréal

By using TEMPO and participating in our scientific study, you consent to the collection, use, and processing of your data as described in this policy.

2. Collection of Personal and Research Data
A. Information You Provide
When registering on TEMPO, you may provide:
• Personal Information: Name, email, phone number.
• Health & Psychological Data: Information related to prostate cancer diagnosis, psychological well-being, and caregiving experience.
• Study Participation Data: Responses to surveys, questionnaires, and psychological assessments conducted as part of the study.

B. Automatically Collected Information
• Usage Data: We will collect information on how you interact with the website (e.g., log-in times, pages visited, time spent).
• Cookies & Tracking Technologies: We use cookies and analytics tools to improve user experience. You may disable cookies in the cookies policy.

C. De-identified Research Data
• Data collected for the scientific study is de-identified. De-identified data will be used for statistical analysis and research to evaluate the effectiveness of the psychological support provided through TEMPO.

3. Purpose of Data Collection
We collect and process your information for the following purposes:
1. Personalized Self-management Support – To tailor guidance and resources based on your individual needs.
2. Scientific Research & Evaluation – To assess the quality and impact of TEMPO’s support services through a multi-week study.
3. Communication & Updates – To provide relevant notifications regarding your participation in the study, including reminders and feedback requests.
4. Website Security & Optimization – To improve TEMPO’s usability, detect security issues, and prevent fraud.
5. Legal & Ethical Compliance – To comply with regulatory requirements and ethical guidelines established by the CIUSSS de l’Ouest-de-l’Île-de-Montréal REB.

4. Data Protection & Security
A. Secure Data Storage & Transmission
• All patient-sensitive data are securely stored on a secure server at McGill University.
• Data are encrypted using industry-standard security protocols during storage and transmission.
• Access to sensitive information is restricted to authorized personnel.
B. De-identification & Confidentiality
• Identifiable personal information is never included in research reports or publications.
• Study data are anonymized to remove direct identifiers before analysis.
C. Data Retention
• Personal data are retained only for the duration necessary to fulfill research obligations (15 years).
• De-identified research data will be stored for 15 years for scientific purposes in accordance with ethical research standards.

5. Sharing & Disclosure of Data
A. No Unauthorized Sharing
• We do not sell, rent, or share your personal information with third parties without consent.
B. Research & Ethical Review Compliance
• De-identified study data may be shared with research institutions and academic bodies, but only in compliance with REB-approved protocols.
C. Legal Obligations
We may disclose data if required by law, such as:
• Court orders or government regulations under Quebec or Canadian law.
• Public health or safety concerns, as required by regulatory bodies.

6. User Rights & Choices
As a resident of Quebec or Canada, you have the following rights regarding your data:
A. Right to Access & Rectify Information
• You may request access to the personal data we hold about you.
• You can correct or update inaccurate or incomplete data.
B. Right to Withdraw from the Study
• You may withdraw from the study at any time without penalty. Your withdrawal will not affect your access to psychological support.
• If you withdraw, the information already collected for the study will be stored, analyzed and used to ensure the integrity of the study.
C. Right to Data Deletion
• Upon request, we will delete your personal data unless required for research integrity or legal compliance.
D. Right to Restrict Processing
• You may request restrictions on how we use your personal data, particularly for non-research purposes.
To exercise your rights, please contact us at prostatecancer.tempocare@mcgill.ca

7. Cookies & Tracking Technologies
TEMPO uses cookies for website functionality and analytics. You can manage cookie settings in your browser and our cookie policies.

8. Third-Party Services
We may use third-party service providers (e.g., secure hosting, encrypted email communication). All third-party services comply with Quebec and Canadian privacy laws.

9. Changes to this Privacy Policy
We may update this Privacy Policy from time to time. Users will be notified of significant changes through email or a website notice.

10. Contact Information
For questions about this Privacy Policy, data security, or your rights, please contact: prostatecancer.tempocare@mcgill.ca

Research Oversight:
The TEMPO protocol and study is approved by the Research Ethics Board (REB) of the CIUSSS de l’Ouest de l’Île-de-Montréal.